5 Things Learning Greek Taught Me About My Mom's Agitation

Also in this edition: the latest news about dementia prediction, prevention, and research; the YouTube chronicles of a couple who are battling early-onset dementia together; video discussions about dementia from four people who are living with it; and much more!

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Voices that Connect Us: The Stories We Tell Our Selves About Our Selves

In addition to the usual fascinating news and views, this edition of The Dementia Newsletter showcases many compelling stories from our fellow caregivers and their loved ones with dementia. It’s a great reminder that we’re not alone in the situations that we face. Enjoy these storytellers’ performances, biographical videos, and articles below.

In this edition:

📰 This Week in Dementia News 📰 
 ➜ Detection, Prevention, and Treatment
 ➜ Their Stories Are Our Stories
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• Video: “Dying Is the Longest Verb” by Alok Vaid-Menon
• ☑️ Take the Poll! ☑️ 
• Caregiver’s Corner: What Learning Greek Taught Me About Mom’s Unmet Needs
• When You Need More Help…

📰 This Week in Dementia News 📰

Detection, Prevention, and Treatment:

Their Stories Are Our Story:

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Video: “Dying Is the Longest Verb” - Alok Vaid-Menon’s meditation on his grandfather’s death

Vaid-Menon’s poem is stunning, and the performance is utterly heartfelt, vulnerable, and genuine. It’s the most touching piece of art addressing dementia that I’ve seen in a long time. The poem and performance are raw, relatable, and real. Incredibly moving.

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Caregiver’s Corner: What Learning Greek Taught Me About My Mom’s Unmet Needs

My partner and I are planning a trip to Greece later this year. It’s going to be my first trip to Europe, and I’ve been insufferably excited. I even decided to learn a little Greek on Duolingo.

I learned a lot of words over the 100+ days I studied…and none of them was “bathroom”! I’m imagining myself walking through the cradle of western civilization or standing in the middle of the Parthenon, unable to enjoy the experience because I have no way to find the bathroom and I’ve really, REALLY got to go!

Imagining myself in that situation gives me some insight into how vulnerable I would feel if I couldn’t communicate: suddenly my mom’s agitation makes a lot more sense. If I couldn’t communicate my most basic needs, I would be agitated too.

If you notice your loved one growing agitated, starting to wander, or becoming aggressive, they may have unmet needs that they can’t communicate. Here are my top five: address these first to see if you can satisfy a need that they have but can’t speak.

  1. Take them to the restroom.

  2. Assess the environment. Are they too cold or hot? Is it too noisy? Are there too many things going on at once?

  3. Are they hungry or thirsty?

  4. Are they bored? Would an activity help to channel their energy productively?

  5. Are they tired? If they need rest, can you create a quiet, comfortable space for that?

These are the five most common “culprits” that people with dementia might not be able to express. If you’d like a free, printable guide on this subject, including extra details, click here to download 5 Strategies for Unmet Needs.

It’s called “the hardest conversation” for a reason: you know it’s time for your loved one to stop driving, and they disagree. Emotions are frayed, relationships are fracturing, and all parties are completely entrenched in their positions. Sound familiar?

If you’d like some help navigating this conversation while preserving your relationship with your loved one, this training gives you a step-by-step walkthrough to get you through the tough spots.

When you’re ready, here’s how elumenEd can help:

Through elumenEd, the parent company of The Dementia Newsletter, I offer the following additional resources:

Until the next newsletter, may you and your loved ones be well.

~Ben

At The Dementia Newsletter, we’re dementia professionals but we’re not medical doctors or lawyers. The information provided is for general informational purposes only and should not be considered as medical or legal advice. Always consult with a qualified healthcare professional for medical diagnosis, treatment, or any health-related concerns and consult with a lawyer regarding any legal matters.

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